Navigating Identity: The Lived Experiences Javanese Women with Polycystic Ovary Syndrome (PCOS)
DOI:
https://doi.org/10.15575/jpib.v8i1.37900Keywords:
Javanese Women Identity ReligionAbstract
Polycystic Ovary Syndrome (PCOS) is a hormonal disorder in women of reproductive age, characterised by a constellation of symptoms including menstrual irregularities, hyperandrogenism and the presence of polycystic ovaries. In a culturally rich context such as Java, the experience of living with PCOS can be highly complex, with various cultural, social and personal factors interacting in a multitude of ways. This study explores how Javanese women with polycystic ovary syndrome (PCOS) navigate their identities within the sociocultural and religious context of Indonesia. A phenomenological approach was employed in the investigation, whereby in-depth interviews were conducted with ten Javanese women diagnosed with PCOS. Thematic analysis identified four key themes from the thematic analysis of the research data and were subsequently interpreted as a representation of the lived experiences of Javanese women with PCOS. he four identified themes are as follows: (1) thoughts about the illness, (2) percepetions of gender roles, (3) religious aspects and (4) social interactions.
References
Authier, M., Normand, C., Jego, M., Gaborit, B., Boubli, L., & Courbiere, B. (2020). Qualitative study of self-reported experiences of infertile women with polycystic ovary syndrome through on-line discussion forums. Annales d’Endocrinologie, 81(5), 487–492. https://doi.org/10.1016/j.ando.2020.07.1110
Bazarganipour, F., Ziaei, S., Montazeri, A., Foroozanfard, F., Kazemnejad, A., & Faghihzadeh, S. (2013). Psychological investigation in patients with polycystic ovary syndrome. Health and Quality of Life Outcomes, 11(1), 141. https://doi.org/10.1186/1477-7525-11-141
Bazarganipour, F., Ziaei, S., Montazeri, A., Foroozanfard, F., Kazemnejad, A., & Faghihzadeh, S. (2014). Healthâ€related quality of life in patients with polycystic ovary syndrome (PCOS): A modelâ€based study of predictive factors. The Journal of Sexual Medicine, 11(4), 1023–1032. https://doi.org/10.1111/jsm.12405
Brenner, S. A. (1998). The domestication of desire: Women, wealth, and modernity in Java. Princeton Univ. Press.
Cooney, L. G., & Dokras, A. (2018). Beyond fertility: Polycystic ovary syndrome and long-term health. Fertility and Sterility, 110(5), 794–809. https://doi.org/10.1016/j.fertnstert.2018.08.021
Creswell, J. W. (2014). Research Design: Qualitative, Quantitative and Mixed Methods Approaches (4th ed.). Thousand Oaks, CA: Sage
Darroch, R. K. (1980). Two are not enough: The value of children to Javanese and Sundanese parents.
Handayani, C. S., & Novianto, A. (2004). Kuasa Wanita Jawa. LKiS.
Hanipudin, S., & Habibah, Y. A. (2021). Karakter wanita dalam tradisi Jawa. AT-THARIQ: Jurnal Studi Islam dan Budaya, 1(2). https://doi.org/10.57210/trq.v1i2.78
Hidayat, S. T., Mulyantoro, I., Damas, S., & Tjandrawinata, R. R. (2023). The effect and safety assessment of metformin and DLBS3233 (A bioactive fraction of lagerstroemia speciosa and cinnamomum burmannii) on improving metabolic parameters in women with polycystic ovary syndrome. International Journal of Women’s Health, Volume 15, 971–985. https://doi.org/10.2147/IJWH.S40968
Koentjaraningrat. (1985). Javanese Culture. Singapore: Oxford University Press.
Lau, G. M., Elghobashy, M., Thanki, M., Ibegbulam, S., Latthe, P., Gillett, C. D. T., O’Reilly, M. W., Arlt, W., Lindenmeyer, A., Kempegowda, P., & PCOS SEva Working Group. (2022). A systematic review of lived experiences of people with polycystic ovary syndrome highlights the need for holistic care and co-creation of educational resources. Frontiers in Endocrinology, 13, 1064937. https://doi.org/10.3389/fendo.2022.1064937
Lin, A. W., Dollahite, J. S., Sobal, J., & Lujan, M. E. (2018). Health-related knowledge, beliefs and self-efficacy in women with polycystic ovary syndrome. Human Reproduction, 33(1), 91–100. https://doi.org/10.1093/humrep/dex351
Lombard, Denys. Nusa Jawa: Silang Budaya. Jakarta: Gramedia Pustaka Utama, 1996.
Milyan, Idaman, & Sahili, L. O. (2021). Analisis sosial budaya terhadap partisipasi angkatan kerja wanita dalam meningkatkan kesejahteraan keluarga. Intelektiva: Jurnal Ekonomi, Sosial & Humaniora, 03(01).
Mousa, S., Brady, Mousa, S., & Mousa. (2009). Polycystic ovary syndrome and its impact on women’s quality of life: More than just an endocrine disorder. Drug, Healthcare and Patient Safety, 9. https://doi.org/10.2147/DHPS.S4388
Ogden, J. (2023). Health Psychology (7th ed.). McGraw Hill.
Percy C, Gibbs T, Potter L, et al. (2009) Nurse-led peer support group: Experiences of women with polycystic ovary syndrome. Journal of Advanced Nursing 65(10): 2046–2055.
Romero, M., Vivas-Consuelo, D., & Alvis-Guzman, N. (2013). Is Health Related Quality of Life (HRQoL) a valid indicator for health systems evaluation? SpringerPlus, 2(1), 664. https://doi.org/10.1186/2193-1801-2-664
Rushinaidu, T., & Eswari, G. (2023). A review article on pcos and its impact on quality of life in women correlation with age, basal metabolic index and various factors. International Journal of Health Care and Biological Science, 4(1).
Samardzic, T., Soucie, K., Schramer, K., & Katzman, R. (2021). “I didn’t feel normalâ€: Young Canadian women’s experiences with polycystic ovary syndrome. Feminism & Psychology, 31(4), 571–590. https://doi.org/10.1177/09593535211030748
Sarbaini, W. (2021). Nilai-nilai pendidikan dalam tradisi tingkeban budaya masyarakat suku jawa ditinjau dari perspektif filosofis. Ability: Journal of Education and Social Analysis, 77–88. https://doi.org/10.51178/jesa.v2i4.292
Simarmata, O. Y., & Lestari, M. D. (2021). Harga diri dan penerimaan diri pasangan menikah tidak memiliki anak di Bali.
Situmorang, A. S. W., Tessalonika, T., Yunita, C. M., & Lubis, D. F. A. (2024). Pola pengasuhan anak usia dini berbasis budaya jawa. Buletin Antropologi Indonesia, 1(2), 10. https://doi.org/10.47134/bai.v1i2.2724
Suzanna, S., Abdul Majid, Y., & Tanda Bela, L. G. (2022). Identifikasi Pengalaman Istri Mendapatkan Stigma Negatif dengan Kondisi Infertilitas. Jurnal Keperawatan Silampari, 6(1), 183–191. https://doi.org/10.31539/jks.v6i1.4107
Taghavi, S. A., Bazarganipour, F., Hugh-Jones, S., & Hosseini, N. (2015). Health-related quality of life in Iranian women with polycystic ovary syndrome: A qualitative study. BMC Women’s Health, 15(1), 111. https://doi.org/10.1186/s12905-015-0272-4
Thorpe, C., Arbeau, K. J., & Budlong, B. (2019). ‘I drew the parts of my body in proportion to how much PCOS ruined them’: Experiences of polycystic ovary syndrome through drawings. Health Psychology Open, 6(2), 205510291989623. https://doi.org/10.1177/2055102919896238
Triratnawati, A. (2005). Konsep dadi wong menurut pandangan wanita jawa. 17(3).
Tumanggor, R. (2010). Masalah-masalah sosial budaya dalam pembangunan kesehatan di Indonesia. 12(2).
Wahyuni, A., Supriyatiningsih, Kusumawati, W., Sedah Kirana, K., & Mayayustika, C. D. (2022). Family history of PCOS, obesity, low fiber diet, and low physical activity increase the risk of PCOS. Jurnal Kedokteran Dan Kesehatan Indonesia. https://doi.org/10.20885/JKKI.Vol13.Iss1.art8
Widyaningrum, L. (2017). Tradisi adat jawa dalam menyambut kelahiran bayi (Studi tentang pelaksanaan tradisi jagongan pada sepasaran bayi) di desa. 4(2).
Williams, S., Sheffield, D., & Knibb, R. C. (2015). ‘Everything’s from the inside out with PCOS’: Exploring women’s experiences of living with polycystic ovary syndrome and co-morbidities through SkypeTM interviews. Health Psychology Open, 2(2), 205510291560305. https://doi.org/10.1177/2055102915603051
Williams, S., Sheffield, D., & Knibb, R. C. (2016). A snapshot of the lives of women with polycystic ovary syndrome: A photovoice investigation. Journal of Health Psychology, 21(6), 1170–1182. https://doi.org/10.1177/1359105314547941
Williams, T., Mortada, R., & Porter, S. (2016). Diagnosis and treatment of polycystic ovary syndrome. Am Fam Physician, 94(2), 106–113.
Zimmer, Z., Rojo, F., Ofstedal, M. B., Chiu, C.-T., Saito, Y., & Jagger, C. (2019). Religiosity and health: A global comparative study. SSM - Population Health, 7, 100322. https://doi.org/10.1016/j.ssmph.2018.11.006
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